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List of Registries | National Institutes of Health (NIH)

    https://www.nih.gov/health-information/nih-clinical-research-trials-you/list-registries
    A registry is a collection of information about individuals, usually focused around a specific diagnosis or condition. Many registries collect information about people who have a specific disease or condition, while others seek participants of varying health …

Defining Patient Registries and Research …

    https://www.ncbi.nlm.nih.gov/books/NBK164514/
    Patient registries have been defined as “an organized system that uses observational study methods to collect uniform data …

5 things to know about clinical data registries | American …

    https://www.ama-assn.org/practice-management/digital/5-things-know-about-clinical-data-registries
    Clinical data registries record information about patients’ health status and the care they …

Indexes, Registers, and Health Data Collection - Indian Hills …

    https://webcontent.indianhills.edu/_myhills/courses/HIT125/documents/lu08_lecture.pdf
    Whereas, a registry is an organized system for the collection, storage, retrieval, analysis, and dissemination of information on individuals who have either a particular disease, a …



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