Havasupai Medical Genetics Study

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Genetic Research among the Havasupai: A Cautionary Tale

https://journalofethics.ama-assn.org/article/genetic-research-among-havasupai-cautionary-tale/2011-02

In 1989, members of the small tribe of approximately 650 poverty-stricken people approached ASU anthropology professor John Martin, with whom the tribe had a preexisting and trusting relationship , seeking to learn why the incidence of diabetes within their community was increasing. Genetic links to diabetes had be… See more

The Havasupai Indian Tribe Case — Lessons for …

https://www.nejm.org/doi/full/10.1056/NEJMp1005203

Arizona State University agreed to pay $700,000 to the Havasupai Indian tribe to settle legal claims that university researchers …

Is the Havasupai Indian Case a Fairy Tale? - DNA Science

https://dnascience.plos.org/2013/08/15/is-the-havasupai-indian-case-a-fairy-tale/

She was looking for genetic markers of diabetes, but instead, used the DNA in the blood to study schizophrenia — or so the …

Havasupai Genetic Research Case Settled - SUNY …

https://www.upstate.edu/bioinbrief/articles/2011/2011-03-the-havasupai-case.php

After seven years of legal arguments, Arizona State University reached a settlement agreement with the Havasupai Indian tribe last year. The University paid $700,000 to 41 tribe members, returned blood …

Why the Navajo Nation Banned Genetic Research

https://www.history.com/news/why-the-navajo-nation-banned-genetic-research

In 2003, Carletta Tilousi, a member of northern Arizona’s tiny Havasupai Tribe, listened to a student’s doctoral presentation. She was …

Genetic research among the Havasupai--a cautionary tale

https://pubmed.ncbi.nlm.nih.gov/23121851/

Genetic research among the Havasupai--a cautionary tale. Genetic research among the Havasupai--a cautionary tale Virtual Mentor. 2011 Feb 1;13(2):113-7. doi: …

HeLa, the Havasupai, and Informed Consent - DNA …

https://dnascience.plos.org/2013/08/08/hela-the-havasupai-and-informed-consent/

The Havasupai have lived in a small village called Supai at the bottom of the southwest corner of the Grand Canyon since splitting from other descendants of the prehistoric Hohokam Indians in Mexico in 300 …

Indian Tribe Wins Fight to Limit Research of Its DNA

https://www.nytimes.com/2010/04/22/us/22dna.html

Jim Wilson/The New York Times. The Havasupai settlement appears to be the first payment to individuals who said their DNA was misused, several legal experts said, and came after the university ...

HLA polymorphism in the Havasupai: evidence for …

https://pubmed.ncbi.nlm.nih.gov/8213824/

This study describes the HLA-A and HLA-B loci serotyping and statistical analysis on an isolated Native American population, the Havasupai of Arizona. Four alleles at the HLA …

Community Research, Ethics, and the Impact of the …

https://blog.primr.org/community-research-impact-of-havasupai-case/

In community research, a discussion with community leaders would be appropriate. In the Havasupai case, members signed a broad consent document to "study the causes of behavioral/medical …

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