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Marfan syndrome - Symptoms and causes - Mayo Clinic

    https://www.mayoclinic.org/diseases-conditions/marfan-syndrome/symptoms-causes/syc-20350782
    Marfan syndrome is an inherited disorder that affects connective tissue — the fibers that support and anchor your organs and other structures in your body. Marfan syndrome most commonly affects the heart, eyes, blood vessels and skeleton. People with Marfan syndrome are usually tall and thin with … See more

DIRECTORY OF MEDICAL INSTITUTIONS - The …

    https://marfan.org/wp-content/uploads/2021/09/DIRECTORY-OF-MEDICAL-INSTITUTIONS-2021-06.pdf
    Marfan Syndrome and Connective Tissue Disease Clinic Novak Center for Children’s Health 411 Chestnut St, Suite 544 Louisville, KY 40202 Clinic serves children to age 21, …

Marfan syndrome and related disorders

    https://www.mayoclinic.org/medical-professionals/cardiovascular-diseases/news/marfan-syndrome-and-related-disorders/mac-20430395
    The Marfan phenotype (long limbs, scoliosis, pectus deformity, severe myopia, aortic aneurysm, valvular regurgitation) is the result of disordered TGF-β signaling …

Directory of Medical Institutions (Clinic Directory)

    https://marfan.org/resource-library/clinic-directory/
    Directory of Medical Institutions (Clinic Directory) A coordinated clinic is the best place to go for Marfan syndrome and related disorders care. A coordinated clinic provides expertise …

Find a Doctor - Marfan Foundation

    https://marfan.org/resources/find-a-doctor/
    It is important to realize that information provided by the Foundation is not meant as a replacement for proper care from a doctor, therapist, etc. Information provided by the …

Resources for Healthcare Professionals - Marfan …

    https://marfan.org/resources/professionals/
    The Marfan Foundation believes that many academic medical centers can provide exceptional diagnostic, management, and surgical services. Years of experience in the …

Dr. Douglas Richter: Insights from a Medical Expert with …

    https://marfan.org/blog/dr-douglas-richter-insights-from-a-medical-expert-with-marfan-syndrome/
    Marfan Awareness Month is a time to raise awareness of Marfan syndrome among the public and healthcare community, and it is important to hear from medical …

Our Team | Columbia Surgery

    https://columbiasurgery.org/marfan/our-team-locations
    The Columbia Marfan Clinic For Marfan Syndrome and Related Connective Tissue Disorders. Call 212.326.8949 for appointments. Our Team For Appointments, call …

Nutrition, Weight, and Quality of Life - Part 3 of 3 - The …

    https://blog.marfan.org/nutrition-weight-and-quality-of-life-part-3-of-3
    A: I think it would be preferred if the dietitian knew about Marfan, but it’s not critical as long as he or she is willing to collaborate with the rest of the medical team. For more …

Marfan syndrome | Johns Hopkins Medicine

    https://www.hopkinsmedicine.org/health/conditions-and-diseases/marfan-syndrome
    Marfan syndrome is a congenital condition, meaning a person has it from birth. Physical signs sometimes present in infancy but more often show up later in childhood or …



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