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Neurofibromatosis - Diagnosis and treatment - Mayo Clinic

    https://www.mayoclinic.org/diseases-conditions/neurofibromatosis/diagnosis-treatment/drc-20350495
    Caring for a child with a chronic condition such as neurofibromatosis can be a challenge. But many children with neurofibromatosis grow up to live healthy lives with few, if any, complications. To help you cope: 1. Find a primary care doctor you can trust and who can coordinate your child's care with other specialists… See more

Neurofibromatosis - Types and Treatments - OrthoInfo - AAOS

    https://orthoinfo.aaos.org/en/diseases--conditions/neurofibromatosis
    Neurofibromatosis is a disease that affects the development and growth of nerve cell tissues. It causes tumors to grow on nerves and can affect many systems in the body including the skin, skeleton, and brain. The tumors, …

Neurofibromatosis 1 - National Organization for Rare …

    https://rarediseases.org/rare-diseases/neurofibromatosis-type-1-nf1/
    Financial & Medical Assistance; Call Center & Information Services ... NORD Editorial Intern, and Justin T. Jordan, MD, MPH, FAAN, Director of the Family …

Support for Neurofibromatosis | NYU Langone Health

    https://nyulangone.org/conditions/neurofibromatosis/support
    People with neurofibromatosis often require assistance for problems with walking, balance, coordination, and weakness. Short-term therapy can be provided at NYU …

NF2-Related Schwannomatosis - National Organization …

    https://rarediseases.org/rare-diseases/neurofibromatosis-2/
    Financial & Medical Assistance; Call Center & Information Services; Bringing Together Your Community; Mentoring organizations. NORD Member List; ...

The Cost of NF - NF2 Information and Services

    https://www.nf2is.org/cost_of_nf.php
    Three forms of Neurofibromatosis (NF); NF Type 1 (NF1), NF Type 2 (NF2) and Schwannomatosis (SWN) are very different, but they all result in the growth of slow …

Coverage Assistance - NF2 Information and Services

    https://www.nf2is.org/coverage_assistance.php
    Coverage Assistance. Government Organizations and NF Charities for medical coverage and research. ... Disclaimer: Neurofibromatosis Type 2 - Information and Services, …

Other Resources - Neurofibromatosis Network

    https://www.nfnetwork.org/resources/other-resources/
    Neurofibromatosis Network PO Box 1530 | Wheaton, IL | 60187 Email: [email protected] Call: 630.510.1115 or toll-free: 800.942.6825

Applying for SSD with Neurofibromatosis | Disability …

    https://www.disability-benefits-help.org/blog/applying-SSD-neurofibromatosis
    This is the most common form of NF and is known to cause heart defects, bone abnormalities, and skeletal deformities. In 60% of cases, it also causes learning …



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