Navigating Care Medically Fragile Child

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Recognition and Management of Medical Complexity

https://publications.aap.org/pediatrics/article/138/6/e20163021/52649/Recognition-and-Management-of-Medical-Complexity

This reliance on supportive care for vital functioning is why CMC, as a group, are sometimes referred to as medically fragile. The term “medically fragile” refers to continual needs for skilled services that support basic life functions necessary for …

Families of Children With Medical Complexity: A View From the …

https://publications.aap.org/pediatrics/article/141/Supplement_3/S195/34454/Families-of-Children-With-Medical-Complexity-A

Not every child requires in-depth care coordination for their health care needs or access to complex medical technology. But every child needs primary care that is …

Supporting Medically Fragile Children and …

https://www.naeyc.org/resources/pubs/yc/sep2017/supporting-medically-fragile-children

With a medically fragile child, continuous coordination among educators, medical staff, and families is essential. Ideally, hospitals or early childhood …

Analysis: As a Parent of a Medically Fragile Child, How I’ve …

https://www.calhealthreport.org/2021/05/12/analysis-as-a-parent-of-a-medically-fragile-child-how-ive-learned-to-stay-calm-in-a-crisis/

Parents of children with fragile, medically complex disabilities are expected to provide the same level of care that intensive care units provide, but they’re expected to …

Improving transitions in care for children with complex and …

https://pubmed.ncbi.nlm.nih.gov/32410674/

Improving transitions in care for children with complex and medically fragile needs: a mixed methods study . 2020 May 14;20 (1):219. doi: 10.1186/s12887-020-02117 …

How a Nursing Shortage Affects Families With Disabled Children

https://www.nytimes.com/2021/06/04/health/nursing-shortage-disabled-children.html

So, although home care is more appropriate for medically fragile children, hospitals receive about half of Medicaid spending on these cases compared with 2 …

Parents of medically fragile children and …

https://theconversation.com/parents-of-medically-fragile-children-and-their-kids-could-use-help-understanding-year-round-125218

Katie Buck, CC BY-ND About 10% of children admitted to hospitals in any given year live with ongoing, serious medical issues. Some of these conditions include …

Raising and speaking out for medically …

https://www.northcarolinahealthnews.org/2019/09/26/raising-and-speaking-out-for-medically-fragile-kids/

Raising and speaking out for medically fragile kids. Parents of medically fragile children have a lot on their plates, but some feel pulled toward advocacy work on …

Medically fragile children: an integrative review of the literature …

https://pubmed.ncbi.nlm.nih.gov/11934119/

Community-based pediatric extended care facilities may be a means of reducing family stress, improving physiologic and developmental outcomes, and reducing cost. Case …

Navigating The Care Of The Medically Fragile Child

https://dayofdifference.org.au/n-medical/navigating-the-care-of-the-medically-fragile-child.html

When you’re the parent of a medically fragile child, it’s important for you to have as many resources as possible. This journey can feel lonely and isolating at times, …

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