Porphyria Medical Specialist

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Finding a Doctor - American Porphyria Foundation

https://porphyriafoundation.org/for-patients/about-porphyria/treatment-options/finding-a-doctor/

Because Porphyria is so rare, few physicians have experience treating patients with the disease. Most patients are in fact treated But the APF can help by putting your doctor's office in touch with a Porphyria specialist who can offer guidance on your …

Porphyria - Diagnosis and treatment - Mayo Clinic

https://www.mayoclinic.org/diseases-conditions/porphyria/diagnosis-treatment/drc-20356072

Porphyria is considered a chronic illness, as the underlying cause can't be cured. However, porphyria usually can be managed by treatment and lifestyle …

Porphyria: Symptoms, Causes, Treatments - Cleveland …

https://my.clevelandclinic.org/health/diseases/17760-porphyria

The term porphyria describes a group of eight disorders that affect the skin and nervous system. Most of these disorders are inherited (passed down from family members). One …

Porphyria Experts and Treating Physicians

https://porphyriafoundation.org/for-patients/porphyria-experts/

Porphyria Experts and Treating Physicians. The APF maintains a database of over 5,500 physicians, researchers, and porphyria experts who treat the porphyrias. The APF cannot validate the …

Porphyria - Doctors and departments - Mayo Clinic

https://www.mayoclinic.org/diseases-conditions/porphyria/doctors-departments/ddc-20356075

Porphyria is a group of disorders that result from a buildup of porphyrin in your body, affecting your nervous system, skin and other organs. Skip to site …

Find a Doctor - United Porphyrias Association

https://www.porphyria.org/patient-resources/find-a-doctor/

Find a Doctor - United Porphyrias Association patient resources Find a Doctor Please contact United Porphyrias to locate a physician in your area, to educate a current …

Porphyria | Condition | UT Southwestern …

https://utswmed.org/conditions-treatments/porphyria/

Porphyria Providers Locations At UT Southwestern Medical Center, our hepatologists provide comprehensive care for people with porphyria, a group of rare genetic blood disorders. Our team works …

Porphyria Center - Internal Medicine

https://www.utmb.edu/internalmedicine/divisions/gastroenterology/research/research-programs/porphyria-program

Porphyria Center. The UTMB Health Porphyria Center has a longstanding interest in the human porphyrias. We focus on research and development of new therapies, and on …

Connect with a Porphyria Specialist - United Porphyrias Association

https://www.porphyria.org/healthcare-professionals/connect-with-a-porphyria-specialist/

Connect with a Porphyria Specialist. The Scientific Advisory Board of the UPA is comprised of the foremost porphyria experts in the US. If you require specialist …

Acute Intermittent Porphyria (AIP) …

https://www.isitaip.com/patient/find-a-doctor

The American Porphyria Foundation (APF) keeps a list of more than 4,000 doctors who know about AIP and other porphyrias. You can also ask your doctor to refer you to a doctor with more extensive …

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